Julie Garner on Portrait #4: Julie Garner Sher Schachameyer on portrait # 3 Susie Weber jenniferreida on Portrait #4: Julie Garnee…
My name is Carla and I was diagnosed with MS in Oct of 2008. Slowly within a few years I lost the ability to go out a lot, work, and even drive a car. MS devastated me and I was brought to my ultimate low. I was a nurse before I couldn’t work anymore and missed it so much. Then one day, some how Making Multiple Sclerosis My Bitch was born. My life had meaning. I made this
Happy birthday to Carla!!!! Carla is a strong fierce woman who was one of my inspirations for starting this blog. I wanted to show her as such, but also wanted to show the vulnerable side of MS so I used tissue paper to show wrinkles in the background!
It was just weeks before my wedding when I was diagnosed with relapsing remitting MS, but from the start I have been fiercely positive and determined that this weird disease will not define me. In a way it has made me appreciate life even more and I feel so lucky to have a great husband, family and friends. My high point was getting back into my lovely sparkly high heels after six months – that is better than any medicine.
Such a beautiful smile and beautiful bride. I went classic with black and white and added a little gold to match the sparkle of the bride and the day!! Acrylic paint on watercolor paper, tissue paper. 11×15
Happy Thanksgiving! I just wanted to share what I am thankful for today. I am thankful for a creative outlet to deal with my MS, I am thankful to all of you for sharing your stories with me and the world. I am thankful for my husband(my biggest fan) for always being right by my side, for holding me up and never expecting more than I can give. I am thankful for my family and friends who support not only me but my art.
I was diagnosed in 1991 with ‘probable’ MS. This was a few years after dealing with optic neuritis, that my ophthalmologist said could be MS related, but in his experience, didn’t seem likely. I should have researched MS right then, but didn’t. If I had, I would have never gotten my second ever flu shot. The first didn’t cause me any noticeable deleterious effects, while the second, two weeks after receiving that shot, I was barely able to get out of bed, stand, or walk. Though I got better in a few days, I never got back anywhere near where I started. The second shot did clear up the residual effects of the optic neuritis.
Working with the Rocky Mountain MS Center, I was diagnosed with Progressive MS. The disease modifying drugs were just coming to market, and focused on Relapsing Remitting MS. They also had affects that that sounded worse than the disease, and I declined Avonex. As my MS progressed, it continued to chip away at my mobility. It took ten years before ending up in a wheelchair, though still able to stand on my own, that only lasted for a few months.
As the recommendations for Copaxone evolved, I became eligible, and have been taking it since 2010; MRI indicates that there have been no new lesions. That however has not halted the insidious progression of symptoms which continue slowly and surely, leaving me to wonder if there is something else I should be doing. Will it stop, slow, or speed up?
I consider myself fortunate that I’m generally pain free and my mind still functions reasonably well, though it does seem to be misplacing details, now and then. That, and knowing I’m in good company.